Tuesday, October 23, 2012

Big Girl!!

Lindley was fussing so I went to check on her and guess what I found.....

I pretty sure she was almost asleep and has no idea how she got this way...

Realizing she has something to be proud about

Ok...someone help me!

Aren't I cute??
 
I'm still not really encouraging the mobility and growing up thing but she seems to be doing it anyway! Needless to say she was pulled out and the bed was lowered!
Silly girl!

Monday, October 22, 2012

First Game Ball!

Lance's coach gives out a game ball to a player that had a good game. Lance has been wanting one and he got one tonight!! So did Lilly's BFF Madison, they were so excited!!
This cracks me up...she is 6, he is 4 1/2 and he is as tall as her!! LOVE THEM!!

So happy!!
 
(You would never know that I had to wake him from a nap and he was mad and said he wasn't even going to go to the game. I had to dress him all the while he was crying and mad. He eventually said, "Fine, I'll go, but I'm not getting a game ball" Mommy:1, Lance:0)
 
So proud of you Lance Maksim!!

Sunday, October 21, 2012

Preliminary Christmas Lists

We made preliminary Christmas Lists tonight. Just so you know Santa will be bringing a BIG gift for each of them and a couple small gifts. We are REALLY wanting to keep gifts to a minimum. They are at a point where they aren't growing out of what they get which is causing us to accumulate too much. So if you need some ideas here you go!

He wrote this himself (I had to help him with a few letters, but he is doing so good).
Translation: Hauler (The sets at Bass Pro w/a truck and trailer), basketball goal, long gun, stompeez, dreamlite and hot wheels are on the back (he ran out of room).

I didn't realize how bad this picture was. Cow girl gun with a case for the gun, a workout shirt with pink and white, stompeez, dreamlite, trampoline, Barbie house, Jewelry, Ipod case with dots to change and big lego house.
 
Not too bad for a preliminary list, but I'm sure they will change. 

It's the Great Pumpkin!

Today we went to Bass Pro to enjoy the fall activities. We took Kayla (a friend) with us and had a great time!
So sweet!!

Their masks!!

Yay!! We found everything on the scavenger hunt! We only had to have help with one thing!

She didn't know what to think about the fish! So funny

This is a SCARY thought!!
 
 





Friday, October 19, 2012

Poland's Syndrome

On Thursday we took Lindley to a pediatric surgeon to have her ribs/chest looked at. We weren't looking to have anything done, we were just ready to have a better understanding of what happened and maybe an idea of what could happen in the future. I am SO happy we did!! We have already learned so much! The surgeon originally told us it was one syndrome and stated that it was purely cosmetic and that her case was mild. He said it was very rare and he couldn't remember the last time he had seen it. He stated he didn't know much about it and would send us additional information. When I received the email later that day it stated that the surgeon had talked with the genetics specialist and he said it sounded more like Poland's Syndrome. They sent us some information regarding it and it sounds/looks just like Lindley! Even the dextrocardia is associated with it. Basically, she has a deformity in her chest wall and pectoral muscle. More than likely she will not even develop a breast (we were prepared for that and are fine with it, that can be fixed as we all know well). At this point that appears to the only issue she will have. We will monitor her and at some point probably have some additional test to see exactly how her ribs and chest are shaped and make sure there is room for everything. We are going to see the genetic doctor to gain a better understanding. However, it's purely for informational purposes. Plus, this VERY rare and I am sure he is interested in seeing her and learning more himself. We are so relieved to have a diagnosis and understanding. We knew she was healthy, but it's good to be able to explain exactly what she has.
I knew she was special, but couldn't really explain it. We are so blessed to have such a rare and wonderful little girl!!

Here are two of the articles they sent us. Keep in mind that the only similairity that all Poland's Syndrome patients have is the deformity of the chest wall. The other symptoms vary, for example her fingers are not webbed. Also, at this point it appears her case is very mild because the dip in her chest is not as severe as others. Of course as we learn more we will share.
http://jtcs.ctsnetjournals.org/cgi/content/full/130/5/1471

http://www.ijponline.net/content/36/1/21

Pumpkin Patch Express

Almost two years ago to the day we left Indiana to start our journey to Alabama for a fresh start. It has been a long rode and many things have changed. However, we can look back fondly and recall our first family outing after arriving in Alabama, The Pumpkin Patch Express!!!

October 29th, 2010. The day after driving all day from Indiana. Look at those baby faces!!

October 20, 2012
She LOVED the train ride!

Look at those monkeys!

Farmers!

Finding the perfect pumpkin

Lilly is there...just blends in

We got them...all 5 of them!!

Smoke bubbles!

Decorating!

Cool pirate ship!

Lance did the pumpkin cannon and they added fire balls when you hit the targets in the front. He did it twice! He thought it was awesome!
 
Bouncy house fun!

I swear she's the happiest baby ever! So laid back. She had a blast!

Our big monsters!!
 
It was a fun evening. They have added a hay ride, which we didn't do cause it was getting late and cool. We are thinking about going back next week for that!
 
 

Croup..

We have had our first experience with croup. Lance started coughing on Sunday and I didn't think much of it. I thought it was allergies because I hadn't giving him his medicine in a few days. He went to school on Monday and the teacher said he did fine (didn't cough too much). That afternoon I had an after school training. So I met my parents and they took Lance and Lindley and went to pick up Lilly from school. When I talked to Mom on my way home she said that Lance had gotten worse and was having some trouble breathing. He had a baseball game and was adament that he go. Lilly had cheer pictures so my parents were taking him. I told him he could go and cheer on his team, but not play. He ended up batting once and playing the outfield because his teacher came to watch him.
We got home that evening and he was feeling rough and his voice sounded bad, but he was only coughing some. I had planned to take him first thing in the morning to the doctor. I gave him cough medicine, put the humidifier in my room and put him in bed with me. He coughed some but settled down and went to sleep pretty easily. He slept maybe 20 minutes and woke up coughing. I think it scared him and he just kept coughing and couldn't catch him breath. He jumped out of bed and ran into the bathroom. I thought he was going to get sick. He just said he couldn't breath. I sat him on my bed and tried to get him to focus on me, but he couldn't.
I called my parents and asked them to come down so I could take him to the ER. He got up again and started saying "apples, mommy, apples". I was terrified he was going to pass out so I woke up Lilly, got Lindley out of her crib and headed to the ER. We got there and they immediately took him in a room and got him on oxygen and got a breathing treatment started quickly. He was so brave and let them do whatever they needed. He started improving quickly. They gave him a steroid shot and took x-rays. By this time my parents had came and my mom took the girls home, Dad stayed w/us. Jeff was at work and I was keeping him up to date on his progress.
The doctor came in and explained that his lungs looked good but that it was croup, a virus that causes swelling in his thorax. He said that it usually hits very suddenly like that. He said he sounded much better but they weren't done with him yet. They gave him another breathing treatment and monitored him for a bit longer. They ended up releasing him and said if he had any trouble again that night to bring him back. Luckily the medicine kicked in and he was able to sleep fairly well. He rested most of Tuesday and Wednesday. He had a follow up appointment with his pediatrician on Wednesday and she said he sounded good. He was able to go to school today and seems to be on the mend. He still has a cough, but it is much better. Now, I'm just crossing my fingers the other two don't get it.

This was right before he woke up and couldn't breath.

Feeling somewhat better on Tuesday, but unhappy his outside play is limited to sidewalk chalk.
 
Hands down the SCARIEST experience of my career as a mother. I honestly thought he was going to pass out. Lilly did SO good and got right up and in the car. She even helped out by getting the diaper bag and handing Lance tissue when he puked in the car. I was so proud of her. Of course Lindley was full of smiles as usual. I now have such empathy for those parents of children with asthma. I can't imagine dealing with that on a regular basis. Very thankful that he is feeling better.